We had the OT evaluation tonight and I was completely blindsided by the outcome. Long story short...he doesn't qualify for OT services. I'll get into all of it tomorrow, for now I am kind of unsure how to take that. Our next route is a physical therapy evaluation and vision screening.
Still no diagnosis...we (meaning the therapists and us) were wrong, it's not Sensory Processing Disorder. Although he demonstrates behaviors related to it, but not enough to warrant a diagnosis. Having mixed feelings about that also.
Lots to tell....the journey continues.
An online journal of our wonderful life with Christopher Jr., who has Autism Spectrum Disorder and faces challenges with global developmental delays in speech, learning, gross and fine motor skills, and social abilities with an unbelievable passion for life.
Receive my posts via email
Welcome To Holland
WELCOME TO HOLLAND
by
Emily Perl Kingsley.
c1987 by Emily Perl Kingsley. All rights reserved
I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.
Autism on The Huffington Post
My Blog List
-
-
Difficult Decision8 years ago
-
-
-
Milestones16 years ago
-
Web Site References
- Age of Autism
- ARTICLE: Jenny McCarthy on Healing Her Son’s Autism and Discovering Her Life’s Mission
- Autism Network for Dietary Intervention
- Autism One
- Autism Research Institute
- Autism Society of America
- Autism Speaks
- Autism Yesterday Movie
- Autistic Vision
- Fourteen Studies
- Generation Rescue
- Gluten-free, Casein-free (GFCF) Ingredients and Substitutions
- Hidden Sources of Gluten
- Jenny McCarthy on Oprah.com
- NID
- Spectrum Magazine
- Summary of Biomedical Treatments for Autism
- TACA
- Talk Autism
- The Autism Perspective Magazine
- UNYFEAT
- Vaccine Nation Movie
- YouTube - Autism Speaks Videos
No comments:
Post a Comment