Something occurred to me while I was doing laundry tonight. And that is how I would have never imagined myself in the role I am in now. I would have never imagined living my life as a mother of a child on the autism spectrum, not that anyone would ever imagine that for themselves. I never would have imagined it being MY kid, I mean, sure as the numbers are on the uprise, we were all about to know someone in our circle who would have a child affected, but ME? Talking to Chris' teacher Jackie this morning, I explained to her who I used to be in my past life. Chris and the entire population of people with special needs have taught me more than I can ever sum up in words and I have become a different kind of person because of it.
My new gig besides being mom to Bella and Chris...autism awareness advocate. I think I am on to something good, it just feels so right...it's almost magical and I'll tell you all about it this weekend.
An online journal of our wonderful life with Christopher Jr., who has Autism Spectrum Disorder and faces challenges with global developmental delays in speech, learning, gross and fine motor skills, and social abilities with an unbelievable passion for life.
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Welcome To Holland
WELCOME TO HOLLAND
by
Emily Perl Kingsley.
c1987 by Emily Perl Kingsley. All rights reserved
I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.
Autism on The Huffington Post
My Blog List
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Difficult Decision8 years ago
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Milestones16 years ago
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Web Site References
- Age of Autism
- ARTICLE: Jenny McCarthy on Healing Her Son’s Autism and Discovering Her Life’s Mission
- Autism Network for Dietary Intervention
- Autism One
- Autism Research Institute
- Autism Society of America
- Autism Speaks
- Autism Yesterday Movie
- Autistic Vision
- Fourteen Studies
- Generation Rescue
- Gluten-free, Casein-free (GFCF) Ingredients and Substitutions
- Hidden Sources of Gluten
- Jenny McCarthy on Oprah.com
- NID
- Spectrum Magazine
- Summary of Biomedical Treatments for Autism
- TACA
- Talk Autism
- The Autism Perspective Magazine
- UNYFEAT
- Vaccine Nation Movie
- YouTube - Autism Speaks Videos
2 comments:
That is really a tease!!! I can't wait to read what you are on to. I hope Christopher has gotten back on track since the holidays!
when do I get to hear about this idea?? I am sure if is fantastic...
I would completely agree that I have learned so much from my son, his therapists, other children and moms that I would have never meet had my life gone in a different direction. ALthough there still are so many struggles I am hoping that I have grown as a woman and mother :-)
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